• Rare Disease Day

Welcome to the website of Aware4Rare – Let’s make rare diseases exactly that: rare!

Imagine a person becomes very ill. Every doctor they see proclaims a diagnosis, but each one is different. They become financially insecure because of the enormous amount of money going into their treatment, and can’t work because of the illness. Their lack of diagnosis also affects their insurance coverage. Now imagine that person is a friend, a family member, or even yourself. This is the story of many individuals affected by rare diseases.

300 million people worldwide are living with a rare disease. Rare disease currently affects 5% of the worldwide population. Any disease affecting fewer than 200,000 people in the United States is considered rare. 25-50 million Americans are living with rare diseases. There are 7,000 + identified rare diseases.

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Our Mission

Our mission is to raise awareness for those struggling with rare diseases and donate funds to the National Organization for Rare Disorders. Our hope is to financially contribute in order to combat the societal pathologies that lead to rare diseases. Let’s make rare diseases exactly that: rare!

Fund raising

Your donation can change that. The money you donate will go directly to the National Organization for Rare Disorders(NORD), “a national steward and a steadfast partner helping those who battle and care for rare diseases feel seen, heard, supported and connected.” NORD is a comprehensive and tunnel-visioned nonprofit organization that envisions a future where every individual with a rare disease, along with their families, can live their best lives.

Articles & Info

Our Team

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Advait Wattal

Founder & CEO

Advait is a 17 year old high school student at Moorestown High School looking to make a difference in the field of medicine. As president of the junior class and captain of the school’s tennis team, Advait is very involved with his local community. Advait is a research intern at the University of Pennsylvania and Thomas Jefferson University Hospital where he is doing research on rare diseases. He hopes to contribute to current literature and help with patient treatment and diagnosis. Advait aspires to become a medical professional.

Mason Kresloff

Co-Founder

Mason is a 17 year old high school student at Germantown Friends School who is determined to combat the societal pathologies that are the roots of modern disease. Last summer, Mason explored his public health passions by getting accepted into a selective course with the Center for Disease Control. As a leader of his school's varsity Cross Country and Track teams and an elected official of his grade’s student representatives, Mason demonstrates leadership and determination. In his free time, Mason plays the drums for his school’s Jazz Ensemble and local band and cooks with his family. Mason aspires to become a public health and medical professional.

Rafe Cultrara

Social Media Manager

Rafe Cultrara is a senior at Moorestown High School with an interest in finance,STEM and technology. This past summer Rafe interned as a Business Analyst at a chemical specialities company and attended two weeks of leadership academics, in which one he was a support counselor for junior attendees. Rafe aspires to attend college where he can study his combined interests.

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Events

More events coming soon

  • 8
  • Sept

50 Miles for Rare Diseases

Running this 50 mile relay is a community-driven initiative aimed at raising funds and awareness for rare diseases. Through the generosity of community members like you, we hope to raise money to keep rare diseases exactly what they should be, rare.
By pledging money for each mile of our relay, you can make a tangible impact on the lives of sick individuals. Remember, these “sick individuals” could be your loved ones!
Together, we can build a brighter future for our community and the world. Join us in our mission to raise money for rare diseases and keep them rare!